freddie-photography:

Photographing A Single Scene of Morning In 9 Photographs

Here is a chronological look at the changes in atmosphere and drama, from dawn to sunrise. All photographs were taken in the space of an hour with the first being taken at 4:50AM and the last at 5:30AM. 

I love the variety and change from walking in the English countryside for just a short time. 

By Freddie Ardley Photography - Follow me on Facebook Twitter

(via rainbowrosepetals)

So Things …

So at the moment things are still gross. Possibly grosser. I went to the ER with this crazy full-body paralysis thing on Friday, and AMAZINGLY the ER Dr. there was not only fabulous but she also got in touch with Hohler (which is no minor accomplishment). She let her know I was getting discouraged/frustrated (as if my e-mails were not obvious!!). I keep sending her articles from the HKPP website, and questions, and my mum has been e-mailing her questions (because I’m paralyzed!) and whatnot. The issue is that it seems no matter what I eat (high carb, low carb etc.) I seem to react with the periodic paralysis, as well as showering causes issues (regardless of the temp of water/time spent in there). As stated above things are gross. The worst is that it makes doing my schoolwork realllllly difficult because my muscles are so weak after the periodic paralysis. But I have found that I can do work before I eat breakfast in the morning. If I could stand to starve myself and live in my own filth I might be able to function tolerably well for an entire day. To clarify, by function I mean sit in bed and do schoolwork all day, as opposed to walking about and doing other normal-person type things. But I got some good news this morning in that Hohler is prescribing acetazolamide and we’ll see how it goes. But, I am alive, still frustrated, which is good because that means that if this doesn’t work then I still have the will and possibly energy to fight some more.

On another note I met with Dr. Chopra (RI) who is a pain specialist. He’s super nice and very funny. He gave me a million things to try which I am in the works of getting. We’ll see how they work. I honestly want to rave on and on about how amazing I think he is, but I am ALWAYS overly optimistic about new doctors because on that first visit it seems like they are going to change your life. But they either make it a little better (which is reasonable) or they make it suck terribly as you struggle to find a new doctor during a crisis. I also saw one of my PPRC/Cripple Camp friends. I love her LOADS and we got to catch up a bit. I wish we lived closer, but regardless I was super glad to see her. Anyways, hands is really sore/tired so must leave as I have schoolwork to save energy for.

professionaldaydreamer2 said: Hi! I see on yr page that u have POTS and mitochondrial disease. I have POTS(&some other stuff) & i was wondering if u could answer a few Q's about mito for me? How did u get diagnosed? @ what age? (Seems like post-childhood onset is rare.&my healthstuff started @ 14, im 23 now). What tests did u get 4 mito? &depressing as this sounds, i know there r V few treatments- would having a mito diagnosis b likely to improve my life @all? (b worth the trouble?) thx so much!! :) hope ur having a gr8 day!

Sorry it’s taken me so long to respond, I haven’t been at my best health-wise and my tumblr has suffered. So there are muscle tests and DNA tests but the problem with these are that sometimes the muscle biopsy doesn’t have bad mitochondria in it or wasn’t done properly, and with the DNA test since doctors don’t know a lot about mito yet you could still have it but not one of the known genetic mutations. I was diagnosed at 22 by a Dr. Korson at Tufts Floating Hospital in Boston, MA. It was like a 3 hour appointment where we pored through my medical records and based on all of my issues he determined that I had it. I’ve been on supplements for it ever since, and honestly when all of my other issues are under control and behaving themselves it really does help. So whatever you want to do, know that it can’t hurt to get diagnosed. Besides, all they can say is no. :-p Hope this helped, and if you have any other questions just let me know!

lierdumoa:

meret118:

turnabout:

amypop:

Oh damn. I guess I’ll have to order more cookies this year. I’m willing to take on the sacrifice — I’m very giving, you know.

Cookies for everyone.

This is just their latest excuse to go after the Girl Scouts. They hate any organization that’s just for females, especially one that’s about empowering and nurturing females. Plus the Girl Scouts accepts all religions and atheists, (They don’t have to include God in their Girl Scout pledge.) , and lesbians, bisexual and transgender members so of course the conservatives hate them. Differences in Boy Scout and Girl Scout philosophies.

Caramel Delights for greater justice!

(via dandelionchild)

Tags: girl scouts

Broken, but Not for Long

The past few days have been my worst in a long time. I slept all of all Tuesday after my colonoscopy and endoscopy on Monday. Overall I fared much better than expected. I did schoolwork on Wednesday and was exhausted in the afternoon, and took a nap. When I got up I felt terrible. I managed to have some of my soup before I became completely paralyzed. My father found me with my head in the soup bowl which was not high enough to drown me as well as the luck that my head and glasses were too wide to sink to the bottom of the bowl. For the past few nights this has been occurring, as well as with tremors/spasms. With it comes fear, more fear than I have experienced in a long time. One would think that it would be for my safety, and rightly that should be my biggest concern. But for me, someone who is literally Harper from Parental Guidance who suffers from “high achievement syndrome” (HAS) I am worried that I will not ever be well enough to complete my “lowered” goals in life. Originally, when I considered myself healthy (just had CRPS/RSD, stomachaches, and migraines) I was going to kick ass and take names. I was going to travel, become a vet, possibly have a farm, and hopefully one day start a shelter. I wanted to volunteer as a vet for the ASPCA after having volunteered there to clean cages, take care of cats, helping the surgery, and giving medications. I wanted all of these things and so much more. I went away to college filled with hope. Not long after my life seemed to begin to crumble before my very eyes, and I could not stop it. I cannot stop climate change. I cannot stop evil. I cannot stop pain. And I cannot seem to stop myself from completely falling apart both physically and emotionally. My neurologist recently informed me that I would in essence become a Parkinson’s patient in the end, it just depends on how fast “the end” comes. I left feeling defeated, but then decided I would do EVERYTHING that I could think of to keep it at bay. TO help myself and to be the healthiest and happiest I could be. I began my vegan diet, an exercise regimen, and began my classes towards my English degree. A few weeks ago everything was great.

Now, I feel like a fool. Both for thinking that I can change the course of my fate but also for feeling defeated after such a minor (compared to others I have had) setback. I am writing because I am exhausted, because I am tired of feeling defeated and must rid myself of this demon. I refuse to go down so easily, but I found my high achievement syndrome  incessently makes me feel the need to mourn and to apologize for being who I am, for who I have become as opposed to what I have always dreamed and expected for myself. I think of the suffering, stress, and money loss that I am to my parents. Sometimes suicide seems like the best option, but honestly I still have so many hopes and dreams for myself, that if they exist I do not want to miss out on them. I dream of finding someone who will love me for all of my flaws and I them. I dream of the child(ren?) I wish to adopt. The animals I could foster and adopt. The lives I could change, big and small, by just existing. But sometimes it is hard to find the strength. Sometimes I am just so tired. So frustrated. So finished playing this game. But after I have my good cry, I will be ready to take up arms again. So hear me autonomic dysfunction, you may get me in the end, you may wither me and cause me more pain than anyone deserves, but before you take me I will have lived.

woodendreams:

(by Trevor Ducken)

down2chill:

WHAT omfg :)))

(Source: buzzfeed, via winglssdemon)

mylittlepony4u:

Product Placementhttp://mylittlepony4u.tumblr.com/
mylittlepony4u:

Inspiring Ponies Everywherehttp://mylittlepony4u.tumblr.com/
"poverty is not an accident, like slavery and apartheid, it is man-made and can be removed by the actions of human beings."

nelson mandela (RIP)  (via gvldenpussy)

POVERTY IS NOT AN ACCIDENT.

POVERTY IS NOT AN ACCIDENT.

POVERTY IS NOT AN ACCIDENT.

POVERTY IS NOT AN ACCIDENT.

POVERTY IS NOT AN ACCIDENT.

POVERTY IS NOT AN ACCIDENT.

(via fatanarchy)

(Source: shyjew, via dandelionchild)

Tags: poverty quotes

quickhits:

And today’s prize for Outstanding Achievement in Republican Racism goes to..
solytaire:


"don’t tell me I am pretty or thin or sweet or good until you have crawled inside my skin and felt the depths and shallows of me. only I know who I am. I live inside myself and it is a rotting cage."

my new favourite post.

solytaire:

"don’t tell me I am pretty or thin or sweet or good until you have crawled inside my skin and felt the depths and shallows of me. only I know who I am. I live inside myself and it is a rotting cage."

my new favourite post.

(Source: crydaisy, via rainbowrosepetals)